'That' Day

A couple weeks ago Keni seemed to get worse and worse. We were at our breaking point and decided to take her to a pediatrician. We took her in on Saturday May 25. Joe filled in Dr. Kwak about what had been going on up to this point. Kwak was confident that it wasn't GI stuff, because of the normal scope. He was reassured when we told him it was Dr. Harnsberger that did her scope last month. The first thing he wanted to do was an MRI and CT to make sure there weren't any masses in her head.  That Wednesday she had the scans done at 9 am, done around 10 am. It took her awhile to come-to so we didn't leave until noon. Before we left, when they were checking her, I said to the technologist, "so I know you can't really say but did everything look normal?" He just kind of looked at me and didn't know how to respond. He finally said, "you know, we really can't say. You will want to schedule an appointment with Dr. Kwak fairly soon so you can discuss results." I knew, or I guess felt, like something was not right. Especially because when I was leaving they reminded me to call-- that day. Meanwhile, Joe was working and had his nurse checking whenever she could to see if the images were up. (He told me later he just felt like something wasn't right.) Joe and the nurse both noticed the scans had been posted around the same time. He immediately started looking at the pictures. He looked at the CT first and saw something weird in her head but didn't know what to think of it. He scrolled through all of those and moved on to the MRI. The first picture that came up, he knew. He knew it was something super big-- and not good. He immediatly called the radiologist to confirm what he saw before calling me.  He then called Dr Kwak to ask what we should do, but he hadn't heard anything yet so said to wait until he heard from the radiologist.
At this point there was no way for Joe to concentrate on work so he decided to come home. It was around 1:30 pm. Luckily the docs that he works with are super supportive and were definitely okay with it. Joe got home and we started discussing what was going on. Keni was resting in her bed waiting for the rest of the sedation to wear off from her MRI and Brock was peacefully sleeping.
The silence was broken by the dreaded phone call. Dr. Kwak called and told me to put him on speaker phone so everyone could hear. He read us the CT and MRI notes first. Then told us he had talked to neurosurgery at Primary Childrens Medical Center and they were waiting/expecting us in three hours. (And by the way, it takes 3 hours from Vernal to get there.) He said to pack a couple for a couple days and head right away! Pretty sure it was the LONGEST DRIVE EVER!
We checked in at the ER around 6:30. After every department in the hospital came in and asked for the story (okay not really but it felt like it) we were admitted to the PICU. It was decided that surgery would be Thursday, at 9:30 in the morning. Oh and up to this point Keni had not eaten since the night before. She was starving and begging for chicken nuggets. Finally after we got settled in our [shared] room they decided she could eat. It was 11 at night!